Friday, January 4, 2013

Things to expect from this surgery

I realize I have posted alot lately in Kaylee's blog but this is the best way to share what I learn about this surgery with Kaylee's whole family.

I talked with a woman from the doctor's office today and she gave me alittle insight on what I need to prepare myself for...  This is a very complicated surgery one of the most complicated surgeries in all of orthopedic pediatric surgeries, mainly because they will be working around the sciatic nerve the whole time.

When they wheel her back it will be 10 to 12 hours before we will be able to see her.  Make sure she does not come down with any type of cold before hand.  They say a month before the surgery because she will be under anesthesia for so long, she will have breathing problems from the cold if she has had one.  She will keep the epidural tube and a catheter tube in her I'm thinking a few days?  Still not sure about that.  When they wake up after the surgery the kids usually are begging for the cast to come off.  She will be in the hospital for a few days then we need to plan to stay there for 12 days afterwards.

She will be sent home with a removable Spica cast only for bathing and diaper changes (very glad we kept her in a diaper!)  We will need the Hippo Car Seat and a Jogging stroller which we don't have. 

After the six weeks are up in the cast and it is removed she will need therapy for gait training, range of motion and other things.  She will need a medical walker which thankfully we already have.  Possible 3 to 4 months after the removal of the cast will she be back walking on her own again.

Thursday, January 3, 2013

~Getting Started~

The first preparation. I  Called and got her pre-op appointment set up we will need to be there February 12th at 11:00 a.m. to set everything up for the next morning.  Kaylee will have to stay in the hospital for 3 to 4 days then afterwards we will stay in West Palm Beach for a week if everything seems to be healing well.  She will be put in what is called a Spica Cast the picture to the side is what this will look like.  We will need to buy an almost $700 special car seat called the Hippo car seat... Wow!  Very thankful for the benefit we had for Kaylee! 


Lots of paper work to fill out and plans to make.  We will be very busy around here for the next month!  But things seem to be going smoothly so far.  Main things to focus on this month is getting this house in order everything sterilized!  And we must make sure not to get as much as a runny nose 30 days before the surgery or we will have to cancel.    I certainly feel an amazing peace over me seem crazy but no nerves or worries just ready for it to be here!  Kind of feels like that last month of pregnancy just all the perparing and the waiting for the baby to arrive,  thats the only way I can describe what I'm feeling now.  But maybe not the joy afterwards of having a baby...  I do look forward to having the time spent with my family for almost 2 weeks we will be together and what better place then at the beach!  Thankful for our father everyday, we are blessed beyond any measures.  Peace be with all who reads this <3     

Tuesday, January 1, 2013

~A New Year~

  Well I am starting the new year off right, I told myself this year I will start back with Kaylee's blog...  It's time for a fresh new start to this new year! 

   Kaylee will be having her first surgery February 13th so alittle over month I have to perpare!  Lets just say I'm not ready!!  We have put this surgery off for to long and now the time has come.  Lots of stuff to learn about this surgery it's not an easy one, this one surgery alone will last 6 or more hours.  There are special car seats to buy and I'm sure alot of special stuff we will need for her at home. I have alot to learn I was reading of blood tranfusions and painful muscle spasms, scary when I think about it!  But never less it must be done for Kaylee's well being so there is no turning back now.


  Some info on the surgery this surgery is called the super hip and super knee surgery.  Dr. Paley her lengthening doctor will have to perform this surgery first in order to stabilize her hip and knee so it will be ready for the lengthening surgeries.  We will be staying in West Palm Beach for alittle over a week then reture home for 6 weeks with her in a lower body cast.  Hopefully we can keep her satisified and still for 6 weeks...  For a 2 1/2 year old I realize this will be very hard!!  Then after 6 weeks of healing time we will return to West Palm Beach to have her cast removed.

  At this point I am just ready for her to have the surgery and be back in my arms.  It seems for me this time before the surgery has been the worst just all the worring and looking at her so happy now and knowing soon she will be in pain and in a cast for so long not being able to move, ugh...  There is light and hope for all this, after she will be moving around so much better and she will gain a whole inch in length!!  We are always thankful for what the Lord has done and no matter what he will get us all through this and make Kaylee and her family much stronger from it <3